Noah is 5. He was born with Sickle Cell disease, a serious disorder in which the body makes sickle-shaped red blood cells. These cells are stiff and sticky and they tend to block blood flow in the blood vessels of the limbs and organs.
This often can cause pain, organ damage while also raising the risk for infection. He is under the care of Medical College of Wisconsin physicians in the MACC Fund Center of Children’s Hospital of Wisconsin. He has endured many pain crises which his mother describes as “unbearable” and which have caused him to miss virtually every holiday due to hospital stays. Still, his mom says he enjoys “everything” in his 4K program at Gaenslen School. He enjoys video games and everything his older brother does. He likes basketball and Steph Curry is his favorite player – but he likes Aaron Rodgers too. He is a typical boy according to his mom who describes his caregivers as “the most caring, compassionate people ever.” She continues “the whole team is awesome – even when we are crabby.”
Learn more about Noah from his mother, Stephanie: